The Rogers Family

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Meet Mac!

 

He just turned 4 and he’s the sweetest, toughest kid I know!

Last May, we were visiting family in Kansas when Mac got sick. He was throwing up constantly and saying strange things like “put my shoes on” when they were already on his feet or “I’m cold” when he was outside in 80* weather. We took him to 2 different hospitals in Kansas and they said he had a virus and discharged him after a couple days.

Our instincts were that he was NOT ok. There was no way he could get on an airplane and go back to St. George. We jumped in the car and drove him to Children’s Hospital in Denver Colorado. He’s no stranger to Children’s Hospital. When Mac was 8 months old, he was diagnosed with Acute Myeloid Leukemia and did all of his treatment there.

When we got there, they decided to do an MRI because of the neurological symptoms he was having. We really weren’t expecting them to find anything scary, he had been in remission from AML for 2 years. As we sat in the waiting room to go see Mac, we were approached by a doctor identifying himself with oncology. He asked for us to go to a private room where he told us that the MRI showed 2 brain tumors.

The next couple months included 3 brain surgeries to remove as much of the tumors as they could and they ended up having to place a permanent shunt in his brain to drain his cerebral spinal fluid properly. This wasn’t a relapse of his leukemia, but a completely new cancer.

The big tumor in the middle of his brain was deemed a glioma but has genetic properties they’ve never seen before. This is unchartered territory for us and the doctors. They said they wish they could tell us of other cases like this but they can’t think of any.

He does chemotherapy daily along with other meds to control the side effects. He had to learn to walk all over again and has worked really hard doing physical, occupational and speech therapies. He has weakness on his left side and will likely have eye surgery this month. His future is uncertain. Our family travels back and forth between CO and UT every month.

He never ceases to amaze us with his strength and understanding. He’s spent a great majority of his life fighting cancer and being at the hospital.

The grey ribbon on the shirt represents his brain cancer and the orange, his leukemia. You’ll notice a lot of pink because as many of you know, pink is Mac’s favorite color 🙂  It always has been. He’s a trooper.

TEAM MAC is comprised of all the blessed people that think of Mac, pray for him and have supported our family in the past and now while we help Mac fight brain cancer. You lift us up in more ways than I could ever express to you. My heart smiles, and my eyes leak when I see these TEAM MAC shirts, hats, water bottles, etc. It represents our love for him and how proud we are to know this incredible boy.

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